Registries are a familiar tool to physicians, often used to gauge past performance to improve future patient care. But what if registries could anticipate patient needs, preemptively employing evidence-based care before a patient falls ill?
We worked with primary care practitioners (PCPs), emergency room physicians, specialists, educators, and pharmacists to design a registry that enables proactive management for children with a genetic, chronic disease. By facilitating "upstream" interventions like the timely delivery of critical condition management drugs, the registry is able to reduce "downstream" crises, such as the use of Emergency Department services.
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